疾病类型-梅奥诊所专栏
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带瘤生存:开通个人的博客或是网站来保持联系
时间:2013-05-14 10:09:53 来源:梅奥诊所 点击:
Communication takes on a whole new perspective when you are diagnosed with cancer.

Dealing with the many tests, doctor appointments, results and treatment visits can be stressful enough, but trying to keep family and friends updated by calling or e-mailing each person can add to your stress and take energy that may be in short supply.

A great way to stay connected with others, including family and friends, is through a secure blog site or website such as CaringBridge. This allows you to simplify communication, reducing the time and energy of constant updates, and keeps everyone in the loop with timely updates and information.

Creating a personal site allows you to invite close family and friends to read updates and leave supportive messages. In this manner, a network of communication and support is created for everyone.

A CaringBridge site can be created by you or a family member (go to www.caringbridge.org to get started). The service is free and it's a wonderful way to give and receive hope and support when you need it most. Private blog sites and websites can also be started at WordPress (www.wordpress.com) or Weebly (www.weebly.com). Not to worry if you're not very tech savvy; the sites are practical and easy to set up.

Some advantages to creating a personal site:

  • You invite those who you would like to give and receive information and updates.
  • Family and friends can read your updates and also write words of support back to you (whenever they would like).
  • You can ask someone else to update your site when you have limited energy or need a break.
  • You can read your messages when you choose.
  • The history of what you have written, including updates and photos (if you like) is always there for people to refer to.
  • You may find that sharing news (both good and bad) is easier in writing than it might be in person or on the phone.
  • It may help with feelings of isolation and give you a unique way to connect to others when you need it the most.

I would love to hear your experiences with blogs and websites that you have created for personal communication. Share any additional ideas and resources with each other.

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